“The Short Bus: A Journey Beyond Normal”, by Jonathan Mooney

Pg. 16-17

What the hell was I doing waiting for an ex-stripper to bring me the keys to a short school bus?

On the most obvious level, the bus represented a path set in motion when I was eight years old and labeled learning disabled. I was drawn to the short bus because it was a public symbol of disablity and special education. The bus emerged out of federal legislation, the Individuals with Disabilities Education Act (IDEA) of 1975, which mandated that children with disabilities be educated in a public school setting. It was a historic moment for my tribe, but there were problems: Schools were not required to fully integrate students with disabilities, and a segregated system of special education programs was created. Then along came segregated transportation: the short bus. Thrown together under the rubric of special education, these passengers included kids with physical disabilities, Down syndrome, learning disabilities, autism, as well as emotional problems. Special education and the short bus grouped together all these different students, expanding our culture’s definition of disabled. The short bus as a symbol of special education says as much (or more) about that culture–its values, beliefs, fears, aspirations, and injustices–as it ever did about people with disabilities.

Published in: on August 24, 2008 at 1:50 am Leave a Comment

“No Pity: People with Disabilities Forging a New Civil Rights Movement”, by Joseph P. Shapiro

Pg. 3

Nondisabled Americans do not understand disabled ones.

That was clear at the memorial service for Timothy Cook, when longtime friends got up to pay him heartfelt tribute. “He never seemed disabled to me,” said one. “He was the least disabled person I ever met,” pronounced another. It was the highest praise these nondisabled friends could think to give a disabled attorney who, at thirty-eight years old, had won landmark disability rights cases, including one to force public transit systems to equip their buses with wheelchair lifts. But more than a few heads in the crowded chapel bowed with an uneasy embarrassment at the supposed compliment. It was as if someone had tried to compliment a black man by saying, “You’re the least black person I ever met,” as false as telling a Jew, “I never think of you as Jewish,” as clumsy as seeking to flatter a woman with “You don’t act like a woman.”

Here in this memorial chapel was a small clash between the reality of disabled people and the understanding of their lives by others. It was the type of collision that disabled people experience daily. Yet any discordancy went unnoticed even to the well-meaning friends of a disability rights fighter like Cook. To be fair to the praise-givers, their sincere words were among the highest accolade that Americans routinely give those with disabilities. In fairness, too, most disabled people gladly would have accepted the compliment some fifteen years before, the time when the speakers’ friendships with Cook had begun. But most people with disabilities now think differently. It is not that disabled people are overly sensitive. But as a result of an ongoing revolution in self-perception, they (often along with their families) no longer see their physical or mental limitations as a source of shame or as something to overcome in order to inspire others. Today they proclaim that it is okay, even good, to be disabled. Cook’s childhood polio forced him to wear heavy corrective shoes, and he walked with difficulty. But taking pride in his disability was for Cook a celebration of the differences among people and gave him a respectful understanding that all share the same basic desires to be full participants in society.

Published in: on August 14, 2008 at 9:45 pm Comments (1)
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“We”, by Yevgeny Zamyatin, translated by Natasha Randall

Pg. 105

The city below looked made of pale-blue blocks of ice. All of a sudden, a cloud appears, a quick, slanted shadow. And the ice turns leaden and swollen and, like when standing on the banks of a river in the springtime, you anticipate–any moment now–a cracking, a surging, a twirling, a bolting away. But then the moment passes, and the next does too, and the ice is still, and instead, you yourself are swelling, your heart is beating more anxiously and frequently. (But why am I writing about this, and where do these strange sensations come from? There’s no such thing as an icebreaker that could break the most transparent and most durable crystal that is our life.)

Published in: on August 6, 2008 at 3:58 pm Leave a Comment
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“The Kite Runner”, by Khaled Hosseini

Pg. 129

I glanced at him across the table, his nails chipped and black with engine oil, his knuckles scraped, the smells of the gas station–dust, sweat, and gasoline–on his clothes. Baba was like the widower who remarries but can’t let go of his dead wife. He missed the sugarcane fields of Jalalabad and the gardens of Paghman. He missed people milling in and out of his house, missed walking down the bustling aisles of Shor Bazaar and greeting people who knew him and his father, knew his grandfather, people who shared ancestors with him, whose pasts intertwined with his.

For me, America was a place to bury my memories.

For Baba, a place to mourn his.

“In the Eye of the Storm: Swept to the Center by God”, by Gene Robinson

Pg. 11

God calls us to the hard work of compassion for our enemies. Some people may quarrel with that characterization, but we do have enemies. It’s a word that Jesus used. The hard part is following Jesus’ own command to love our enemies. Not to like them, not to be paralyzed by their opposition, not to give in to their outrageous demands, but to love them nonetheless. To treat them with infinite respect, listen to what drives them, try our best to understand the fear that causes them to reject us, to believe them when they say they only want the best for us. That’s hard work, and we can’t do it without God’s own Spirit blowing through us like wind, breaking down our walls, causing our assumptions to “come loose,” and reminding us all that our enemies are children of God, for whom Christ died and through whom they will be saved.